Writer52 - I don't think Dyiana really meant it. I don't know if she or the Yedda team removed her post but, her apology was not to defend her first post - it's a tough topic, generally, perhaps something that no one helped her with or made difficult on her before the options that are available today, existed.
As you pointed out, Marion has many very good options, while her mom is recovering and both of their experiences can help improve, generally or specifically, healthcare, overall, if these supports are aware of where their educational materials don't let anyone fall through the cracks.
I don't know the stats but, they say, stress is the biggest killer.
Many of these orgs truly benefit from hearing (and helping/supporting) all people willing to fight to improve their situation. The majority of work is accomplished off-line although Yedda (TM) is often a lifeline for many people, for various reasons.
Again, stay cool, Marion - you'll find the resources that you know are best for you based on your understanding of your situation - If it were hopeless, you wouldn't have asked and found the support of others.
Please keep posting if you want or need to. People do care.