Very good suggestions. Your own doctor should have suggested a specialist. It sounds like there is definitely some sort problem. It is very good that you are being proactive about her care. The sooner she is diagnosed and starts treatment, the better the prognosis (usually) is. Easter Seals is a fabulous resource. You can contact them online, tell them your issues, and ask for a site close to you. They have specialists and services available for those who need it. Go to easterseals.com to get started. You can look around the web site and contact them for further information. Remember, the quicker the problem is diagnosed, the better it is for your daughter to get the help she needs.
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