Dear Becky,
I truly understand how you feel. I have been through this ritual many times only because the GP that stated he "wanted to be my PM doctor" was prescribing my pain meds for at least 8 yrs or more. We live in a rural area in MD and there are NO PM physicians in the whole county. He didn't know what he was doing, and the two past Christmas' he decided to just not prescribe the medications on the day they were due to be refilled. I believe he got into some type of trouble and beings that over the years he raised the Oxycontin to 320mg -3 times a day, with break thru 15mg oxycodones and refused to take me off of Duragesic,( 200mcg patches every 3 days). He just lost it. Anyhow I am just saying that you do not have to explain your reasons to people as to why you take pain medications, when pain interferes with your daily life, and there is no fix for your medical problem. I also have tens, traction, craniosacral-biofeedback, inversion table, bought my own oxygen machine,and all types of gadgets that I use to try to meditate or help with my pain.
The facts are that there are very few doctors that do only PM. Don't even try an anesthesiologist for PM because they don't prescribe medications and it will be a waste of your time waiting for the consult.
I did see that someone recommended getting in touch, or becoming a memeber of The American Pain Foundation. That is a wonderful idea. I am a member and I used to be a spokesperson for them until I became too ill. They can help you and they have links to other Chronic Pain Sites that could help also. Their website has improved a lot over the years and I do believe they can steer you in the right direction.
In the mean time, by your GP some flowers and thank him/her profusely for keeping you from going into a detox because we have a lack of professionals in the Pain Management field.
Your spinal problems seem horrible and you are a patient in need of pain medications. I have spinal tumors, spondyloidosis, spinal stenosis, herniated and torn discs, sciatica, scoliosis, osteoporosis, at the age of 44 and I cannot imagine how bad it hurts to have your spine fused. How long will your family doctor keep prescribing the pain medications? I read that you mentioned that a doctor did give you a list of PM physicians and that the closest doctor was 125 miles away? I have to do the drive also or I do not get any Pain medications. It is an all day trip but, after I became established with the new doctor, he only needed to consult with me every 3 months. That makes it easier and maybe the laws in TX are similar. I find it strange that each state has different laws on prescribing narcotics, and different penalties for the abusers or thieves. I heard that FL is full of PM physicians but neither of us live there so that doesn't help. Im sorry for rambling. I know the fear you are going through, not knowing if you are going to get your prescriptions the next month for reasons that are not your fault. The physicians don't help find a new PM physicians very much, they just hand out a list of names that are probably out-dated.
A word of warning, I have been to over 200 different types of physicians over the last decade, and I have found that Pain Management Clinics are not the right avenue. They want to put the patient on Morphine instead of what has been working for the patient, OR, the first thing I would hear is that I need to come off of the Pain medications. I don't even have a diagnosis to some of the most painful symptoms that I've had to endure and they want me to come off of the pain medicine and feel the full force of all of the painful symptoms that I have also? I think not.
There is a place named, The Laser Spine Institute that claims that they have had zero failed back surgeries. I'm not even sure if what they do is surgery. I have many spinal problems but getting my spine fixed is about 4th or 5th on the back burner. If you do have spinal problems you should search for the above institute and email them and ask them if they can help.
There are over 80 million Americans alone that are suffering in chronic pain because of the lack of physicians that will prescribe pain medications. Oxycontin for me, is the best pain medication that I have ever tried and I've been on it for about 9 or 10 yrs. There is no ceiling effect, but most doctors will tell you differently because they are afraid to prescribe a dose that actually works or they do not even know how the medicine works.
I wish I could help you more, I have a lot of information about why there are not PM doctors, but I agree with the earlier post. Email the American Pain Foundation as they are a very helpful and powerful organization.
When I get jilted or start thinking about the undermining the government is doing to save the economy by letting us die from our illnesses and suffer in tremendous pain, die w/o diagnosis, commit suicide because we cannot take the pain anymore, I feel that of the 80 million Americans and their families that are suffering also, we should get in our wheelchairs, hooverounds, etc.. and take over the stupid DEA/government. There are more of us then there are of them. It is so hard to get PM's but there is such an abundance of it on the streets. I have children that range from 11 yrs old to 27 yrs old. I hear about high school to early 20 yr old people that are taking oxycontin, vicoden, percocets, anything, and crushing them up and sniffing them! They steal them from their parents or rob homes. It disgusts me how the police where I live know who they are and do nothing about it. We have a convenience store in our state, Fastop. Every Fastop that I've been to is a "one stop prescription shop". The dealers just stand out front and sell them meds that we need. I wish the law would go after the junkies and dealers and leave the doctors alone.
Rambiling again. Good luck to you. Try the American Pain Foundation. If you have no luck I will look for some other entities in my old puter for you. You should think about consulting with the PM doctor that is 125 miles away because you may end up with no pain medications at all. Doctors don't care how inconvenienced you may be, or how sore you will be after a ride all day. Maybe this doctor will only want to consult with you every 3 months as mine does, especially since you are an established pain patient and your not just starting out. You don't want to have to find out what your real pain feels like.
Good Luck and God Bless,
Kendra