Hello.  You sound very much like me.  My diagnosis is Chronic Progressive Idiopathic Peripheral Neuropathy.  In other words, the symptoms became the diagnosis since the idiot doctors never could figure out the cause-but it'll get worse for sure.  It took 5 years just to get that diagnosis and going on 10 years since.  Long story short, sometimes the pain is so bad I have some very grim thoughts.    Neurontin was useless for me.  I'm on Lyrica and lots of it.  I also take Pamelor at night to help with the pins and needles... how much it helps seems to vary as much as the weather.  So far I've managed without narcotics.  I have no idea how.  I just take it one day at a time, sometimes one hour at a time.  I've had plasmapheresis done and it didn't work at all.  Not sure I'll consent for it again.  The risk just doesn't add up for me.  I'm mostly numb below the knees, but that only means I still get the freaky misfiring nerve pain, but I couldn't tell if I was injured there unless I happened to see it happen.  My hands and arms aren't affected as much as my legs, but sometimes they give me all kinds of grief.  I've used wrist splints, leg braces, slings, whatever helped whenever I needed it.  I use a cane most of the time, to walk, but I use a scooter when I feel i need to.  I'm permanently disabled and 45 years old.  If you want to hear about the silver lining on this dark cloud, sorry, there isn't one.  There's no cure for me.  I wish you better luck.