Live life to the fullest.
I have a client who was diagnosed last year as mildly narcolpetic. She has become increasingly depressed and her narcolepsy has signficantly worsened. (I'm sure there is a connection between the level of her depression and her narcolepsy); however, I have never treated a narcoleptic person before and was wondering if anyone had any experience with this disease. She is a student and finds herself falling asleep in class every day without fail. She also finds it extremely difficult to get out of bed in the morning and stay awake throughout the day. She is currently taking Provigil but it does not appear to be working. This is making her even more depressed and her life is "spiraling out of control." Any suggestions?
I also have depression and narcolepsy, I also fight the desire to sleep all the time. I have tried all stimulents (modafimal being the worst for me) At the present what I take is dexedrine one a day to get going. I still could sleep all the time. The only thing that has worked for me is not meds but I decided to ACCEPT what I have and tell my self we are given everything for a very good reason we just may not know it. I don't feel guilty not it I sleep. I started to get back into art and I now have a love and actual work in a store. The more you fight what you have the more you are not excepting your self and telling your self your not special. I started to say to my self all the time when I felt sad about sleeping. I said to my self "WHO CARES" "i AM WHAT i AM AND SLEEP OR NOT i AM SPECIAL' i start to reverse my thoughts regarding the posibility that I am gifted from having this. I mean you have to admit having this desease changes your life in regards to how you understand many thisgs. Ask your self how have you change for the better from what you have been given. You have to be honest with your self. I am very sure that you have a listening ear and a compassiona about you that cares about others because of what you have. You most likely need to meet others who also have what you have and you will see how much knoledge you have on how to cope and survive. Never give up. I am also a nurse and I really believe accepting what you have and working on building your self esteme and realaizing what a special part you play in the world. Hang in there! Trixy
A man (or woman) who won't die for something is not fit to live.
-Martin Luther King Jr.
If I were you, I would refer your client to a specialist, someone who can help her to deal with her problem correctly, so she can live her life without depression and without falling asleep all the time. I know that this is possible. There are many things that treat narcolepsy; she just needs to get the proper treatment and the proper attention. Maybe you can do some research to help her find the best specialist?
Thanks Isabella for your response. She has been referred to a sleep specialist but she is not finding any relief in what this doctor has prescribed (the Provigil). I had a passing thought that doing yoga might help, but I really do not know. I was hoping someone on Yedda has experience or knows someone who has narcolepsy and has some suggestions on how they successfully live day to day.
stress, skin disorders, mood swings, anxiety, bipolar disorder, head trauma, fibromyalgia, arthritis, medicine, herbs, single-parenting, major depression, dieting, weight loss, weight gain, migraines, pain
Narcolepsy & depression together is enough to make you want to give up. I know because I suffer from both as well. I take provigil, prozac, xanax & natural herbs. I really get tired of taking all this medication because to be quite honest, it don't help a whole lot. I never seem to get enough sleep & I walk around all day kind of in a daze. I'm not as chipper as I know I should be. I get snappy real easy, have no energy or motivation. If it wasn't for my 6 & 7 year olds I probably would never get out of bed. I know that sounds pathetic but so is having to live a life with with major depression, narcolepsy, anxiety & bipolar disorder. I guess you could say that anyone with all that does extremely well to carry on a life. Add fibromyalgia, arthritis, bone spurs, bulging disk, head trauma(which causes migraines) to all that. How do I keep going? Well it's got to be sheer willpower & the love I have for my children. I also ocassionaly take the energy fat burner pill called stacker 3. It helps a whole lot but since I do have anxiety I HAVE to take a xanax at least 3 hours afterwards or I get so shaky I feel like I'm going to go crazy. I personally recomend anyone with narco to try this pill but remember not all individuals can tolerate pills of that kind because of severe jitters. I don't reccomend it to anyone underwieght or someone who doesn't need to loose ANY weight at all! I also take a herb called thyroid T-3(stimulant-free) which boosts thyroid output & metabolism. In addition I also take colon clenz(available at wal-mart), this is an all natural antioxidant which also helps you rest better at night. It contains valerian which is an herb for rest & relaxation. Most importantly we are all special no matter what ailments & problems we have. Think positive, keep busy, get a fun hobby, talk to a good friend. Also reading blogs like this can help when you are feeling really down.One more thing I do, which sounds kind of silly, is to pretend like I'm really happy even if I'm not. this somehow makes me forget for awhile that I'm tired, sleepy & depressed.
I am a divorced now single 49year old mother of two. I have narcolepsy I had ben going to a Sleep Doctor for sleep apnea where my breathing would stop. After a car wreck they took my drivers license told me I would never drive again that I believe you have sleepdisorder, sleep walking and narcolepsy. I to am on provigil and just about 20 other med to help depression, pain of a lot of illnesses. The doctor told me to nap once in the morning 1 hr and the afternoon 1 hr. Work her schedule around this and the provigil 200mg I am on now. Morning and night and to come down xanax and Cybalta for deepression and pain from being a dietibetic. Then the high blood pressure provigil brings and then sometimes the days add up sometimes 2 to 3 days I have gone with out sleep at least with me knowing. It is like another part of life a part you don't remember. My wreck I don't remember. The next day I felt the pain and they just added another pill or one more of the ones I am all ready taking. They tell me emotions trigger these attacks of sleepeness. I became ill and was taken to the hospital the next day they said it was congesonnal heart failure. I don't remember the rest of the day.When I ask what happened they just say I have never seen someone go into narcolepsy before and you were bad really scary. Be safe for your family take meds as they say and keep a dairy I find of I write before I fall asleep I write when I am in the state of narcolepsy. But the troubles in my heart a bad marriage a man I married turned Dr. Jerk on me date rape and everyday living with pain and people not caring for the disabled. Hope I helped some Keep in touch maybe a blessing will take this nightmare away.
I'm glad you asked, it shows you care. I am a 51 year old female, I knew I had this when I was about 15 or 16 years old. I was not officially diagnosed until I was 21 years old. The best remedy I ever used was a herbal, ephedra/ma huang, but it is now illegal in the U.S. I had the least amount of undesirable side effects and by far the best control. The second best, the one I currently use is dextrostrat and ritalin, I take as little as possible in order to stay alert. Provigil was by far the worst thing I ever got stuck using. Good for the mind, not very effective for staying awake, the worst was the side effects, my whole system shut down. Extremely dry mouth, dry eyes, unable to urinate or #2, no appetite, rapid weight loss, appetite loss, and then I eat the house down when the meds wore off, not a good thing to do before bed. It also made it hard to fall asleep at night, it lasts too long. Another medication is xyrem, it works very well for a lot of people, but I have children. It is frightening to think that if there were an emergency, a fire, I would be completely knocked out from medicine. I had trouble in the mornings with that it, just did not wear off well enough, you need a lot of time to sleep with it. The holistic approach works okay but you need to be able to schedule naps during the day, or right when you want one. This is very tricky to find a dark, comfortable, quiet spot. I can fall asleep anywhere, anytime, but I will not stay asleep. The worst part is, the more you fight off sleepiness, the next round of a sleep attack is usually much stronger. It is horribly embarassing, people, even doctors, think you can tough it out, just work around it. Tell that to someone behind the wheel of a car or in the middle of a job interview, a date, I even ragdolled during a crew meeting in front of a new boss. I scared her to death! I generally stand during meetings or watching films. This is impossible with working, in spite of all the laws that protect us, employers see it as an unreasonable accommodation. I have managed to stay employed almost 30 years by the grace of God. It continues to be a struggle, I get depressed a lot, it should not have to be this way. The very best thing I can do to help myself is to exercise every morning. Even 10 short minutes of aerobic anything will get the blood circulating, keep a rigid routine of going to bed at the same time and waking at the same time, it helps a lot. Check out Narcolepsy Network, Advocates for Sleep and Stanford University, they have a specialist in Narcolepsy. One last tip, anything that makes a normal person sleepy will make you go to sleep. As one doctor put it, narcoleptics feel daily as would a normal person would feel if they had not slept for 72 hours and were still trying to accomplish a boring task at 3 in the morning. It's not easy but keep trying!!!!!!!!!
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Is it that just a mind set, I think she/he should practice her/his self to stay awake.
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I think there is medicine for those who has similar problem.
i think you must understand what he/she experience just keep him/her awake to practice his/her selp
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