On the medical field there seems to be many self proclaimed M.D.s, so why don't you tell me what is the best way of approach of the treatment of neuroepithelial cyst? Diagnosed 2005, doubled it size by this year, located between pituitary gland and hypothalamus.
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First I need to know if the "cyst" is composed of neural epithelium or just located there before I try and find procedures used to treat it.
Do any of these terms ring a bell?
Astroblastoma
Ependymoastrocytoma
Gliomatosis Cerebri
Neuroepithelial Neoplasms
Neuroepithelial Tumors
Spongioblastoma, Polar
I have done some research on neuroepithelial cysts and found that some think the best way is through endoscopic surgery-which is much less invasive. Talk to your surgeon about this most of the time if there is fluid it can be drained this way. I am assuming you have had a cat-scan and pet scan. Please let me know. I wish you well. Sherry
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Thank's for the answer! I saw my neurologist in MGH (Massachusetts General Hospital) a week ago and since I don't have any disturbing symptoms (double vision, dizziness, numbness of the limbs etc.), it's OK for me to just wait and go for a follow-up MRI in six months. He mentioned that they rarely treat it surgically because it's invasive and "dangerous". If the cyst is still growing, he mentioned the draining procedure. Are you a med student or just 'generally interested' of the topic?
I'm glad you saw your neurologist, no I'm not a medical student although I kind of wish I had those years back. I'm an RN for many years. I'm sort of semi retired still work but cut my hours and work very closely with pain relief and non-invasive treatments. Glad I could help. Feel better Sherry
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